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Patient Updates

July 25, 2010. Unfortunately for many cystic fibrosis patients in Ukraine, there are presently no specialized cystic fibrosis clinics in this country. On recomendation of Serezha's doctor as well as the US pediatritian that consults the Help Journal, his parents sought admission to the nearest clinic that specializes in treating children with CF in order to address his recurring health problems and establish a course of treatment for the nearest future. The good news is that inpatient CF clinic in Moscow Institute of Pulmonology has agreed to admit him in September. The bad news is that since Serezha is a foreign national, his family will have to pay for his stay at the hospital and cover the costs of tests and medications. While we won't know the exact amount needed, the estimate is around $2000. Again, we ask for your help in raising funds for Serezha's treatment.

June 20, 2010. Thanks to your continued support, we were able to purchase necessary medical equipment, including a nebulizer and a pulse oximeter for Serezha Sukhodubov. Serezha's parents, and all of us at Help Journal thank you for your generosity.

March 15, 2010. With your help, we have raised enough money to purchase a wheelchair, a standing frame and a bathing appliance for Katya Samokhina. We will keep you updated on the girl's progress. Thank you for your generosity!

February 4, 2010. Nikita Polischuk died today in the Kiev Children Hospital in Ukraine where he has spent the past several months due to a lung infection. Sadly, the complications were too sever for Nikita to overcome. Nikita's mother has lost her only son.

For the past year, Help Journal has been raising money for Nikita's treatment. Unfortunately, when we started helping Nikita, his disease has already progressed too far, and the damage to the lungs and heart was irreversible. For most of his life, Nikita didn't have adequate treatment and medication management for his disease, just like thousands of other children and adults with cystic fibrosis in Russia and Ukraine.

Nikita didn't even live to be 16 years old. However, in the past year, thanks to your help, Nikita's condition was stabilized, and he was able to spend several months at home with his Mom. He found many new friends, and received letters of support from overseas. We greatly appreciate your help for Nikita.

Just several days before he died, Nikita made a video where he thanked everyone for their help. Please watch this short video, it was made for all of you.

 

January 10, 2010. Alesha Levantuev passed away today. His condition had been extremely serious for the last two months, and yet Alesha continued to fight despite the odds of recovery being very slim. Unfortunately, the fungal infection was too severe, and even the most advanced drugs and two surgeries could not beat it. We are grateful to all people who helped Alesha when he first fell ill four years ago and recently, when his disease returned. Everyone who was fortunate to meet knew this remarkable young man will remember his kind attitude to people and his courageous fight against the deadly disease. Our thoughts and prayers go out to Alesha's family.

November 29, 2009. Alesha Levantuev is in critical condition now as his intestinal infection worsened. Tomorrow the doctors will attempt to remove nectrotic tissue from his intestines. Alesha may need expensive antibiotics Noxafil and Amfolip after the surgery.

November 25, 2009. Anna Soboleva has severe form of graft-versus-host disease, a complication of the bone marrow transplant. She is hospitalized in the intensive care unit. Her parents need help purchasing medications she urgently needs, Albumin and Vfend. Please help Anna battle her condition!

November 3, 2009. Alesha Levantuev has been receiving expensive treatment with antibiotics for the intestinal infection. His condition is stable; however, he may need additional funds for treatment. We'll be updating soon.

October 26, 2009. Alesha Levantuev suddenly developed acute appendicitis, and needed urgent surgery. While the surgery went well, Alesha still has a high fever and a very low white blood cell count. He is being treated with antibiotics and leukostim.

October 13, 2009. Alesha Levantuev is completing the forth round of chemotherapy, and is doing well. A CT scan didn’t show any regions with high uptake of contrast agent.

September, 2009. Sadly, one of our previous patients, Alexei Levantuev, has suffered a relapse of neuroblastoma after being cancer-free for 2 years. He is currently undergoing chemotherapy at a St. Petersburg hospital. Alesha has not yet requested financial assistance from HelpJournal but we are following his story closely and wish Alesha quick and full recovery. If you would like to help Alesha and his family during his current course of treatment, please visit his page on website of our sister-foundation Advita.

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